AD, Patient & Community Liaison

Job Description:• Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers• Empower patients and caregivers with knowledge and tools to navigate their SMA journey• Educate patients and caregivers about the benefits, proper use, and potential side effects of the brand product(s)• Provide resources and education on treatment expectations• Develop relationships with local advocacy chapter leads• Attend events throughout the country by hosting the Novartis table, meeting with SMA families• Provide insights/learnings to Advocacy, Marketing, NPS and Market Access teams• Identify gaps in patient and caregiver knowledge and provide recommendations for improving educational content• Document interactions and feedback from patients and caregivers to improve the education program• Contribute and participate in internal and business reviews• Maintain working knowledge of required platforms and processes• Ensure compliance with all NVS policies and guidanceRequirements:• Bachelor’s degree in healthcare (i.e.social work, genetic counseling) education, or a related field• Minimum of 3-5 years of experience in patient education, pharmaceutical, or healthcare support roles• Experience in gene therapy and rare disease• Exceptional communication and interpersonal skills• Ability to present complex information in an empathetic, clear, and engaging manner• Experience delivering presentations in front of a live audience• Experience working within regulatory and compliance guidelines in the healthcare or pharmaceutical industries• Proficiency in using virtual tools for education (e.g., video conferencing, webinars)• Ability to think creatively and conceptually• Ability to lead, motivate, develop, and influence others• Strong teamwork and collaborative skills and mindset• Proven ability to work effectively in a matrixed environment• Ability to travel 70% of time, with weekend travel required• Bilingual Spanish speaking preferredBenefits:• Health, life and disability benefits• 401(k) with company contribution and match• Generous time off package including vacation, personal days, holidays and other leaves Apply tot his job